I told her that he did post occasionally but that his days of sharing real time wisdom about his journey with The Grey Lady (his name for this disease) are probably over.
And then that very day Jim posted what, to me, was an astounding report on his condition. Here is a small portion of it.
One on one I am more comfortable than I am with two or three or four. In a crowd, when I sometimes get a bit frantic, simply give me a reassuring look. That usually calms me down. I do better these days in low sensory experiences. The music seems louder than once it did: flashing lights and loud noises startle me, and jumbled conversations of many voices unnerve me and I feel like fleeing to a quieter place.
The main reason the above is so special to me is selfish. It accurately states the way I often feel with this weird Meniere's Disease. I'm on a website with other sufferers world wide and Jim's descriptions here of the world from his Alzheimer's view express the same symptoms as our collective Meniere's view.
Of course, it's not the same. Meniere's is manageable and not life threatening. But Jim's words remind all of us that our perceptions of the world change dramatically as we deal with the various changes in our aging heads.
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